In the Stacks: Medi Facts Brought to You By Steve

Medi Facts: Brought to You by Steve

purplebutterflyOver five years ago, the love o’ my life was diagnosed with the auto-immune disease known as Systemic Lupus Erythematosus. Lupus is a chronic inflammation of the internal organs of the body. For most every Lupus patient, it becomes extremely hard to retain all the aspects of normal function. It is a bitter struggle at times, but we’ve managed to bring as much normalcy to our lives over the years. And I happen to think that although the illness itself is what it is, which is absolutely horrible and should NOT be affecting my beautiful, amazing partner, we make it work the best we can. It is estimated that about 1.5 million and Americans, and about 5 million people worldwide have some form of Lupus. About 90% of all Lupus patients are female and all patients develop the illness somewhere between the ages of 15-44. I bring this up now because May is National Lupus Month. Many people have contributed to finding a cure or more progressive treatment for Lupus over the years. Also, you all might be surprised to know how many celebrities have come clean about their Lupus diagnosis within these last couple of years. Just to name a few, there is Seal, Toni Braxton, Bobbie Brown, Nick Cannon, as well as the late & great king of pop himself, Michael Jackson. So for May, I am honoring the symbolic purple butterfly, and showing my support for anyone and everyone faced with this horrible illness. It makes me that much more proud to wear my new Club Read shirt.

One thing that has helped me over the years with understanding this illness has been to study up on it as much as I can. The library district has been an invaluable source of knowledge for anything relating to auto-immune diseases. Whether it has been something in print like The Lupus Book, Lupus: Everything You Need to Know, and before our last copies disappeared I was shocked to see The Lupus Recovery Diet by Jill Harrington. Also, on the Library District’s website there are numerous databases that feature tons of current information about health/health care. You can see countless articles on medical research, see diagnosis information for all diseases known throughout the World, and what treatments there are available, as well as how well they work. For any further information you can always contact your local librarian, or definitely stop by the amazing Health Sciences Library located in the West Charleston Library. Now to finish up this blog, I just want to share a quick story that some of you might find to be extremely interesting.

Many many years ago, there was a little boy named Julian. He went to school with a lady named Lucy. They were extremely close all throughout their years in school together. They stayed good friends into their adult lives and were always there for each other. Lucy ended up getting diagnosed with Lupus, and a few years ago she unfortunately passed away due to Lupus related complications. Julian was devastated by the loss of his very close friend. Since then, Julian has become the Global Ambassador for the Lupus Foundation of America, helping to spread the word about this disease and is striving for a cure. But the interesting thing about all of this is my personal side note to the story. While Julian and Lucy were in school together, Julian made a special drawing with Lucy in it. He filled his drawing with all kinds of surreal images and brought it home to show his dad. His dad, who happened to be in a band at the time, saw the picture and had Julian explain the drawing to him. From that, Julian’s dad made a song about the drawing. That song has become quite popular over the years, and I just wanted to leave the lyrics to it here so that maybe it sounded familiar to you all.

Picture yourself in a boat on a river
With tangerine trees and marmalade skies
Somebody calls you, you answer quite slowly
A girl with kaleidoscope eyes

Cellophane flowers of yellow and green
Towering over your head
Look for the girl with the sun in her eyes
And she’s gone

Lucy in the sky with diamonds
Lucy in the sky with diamonds
Lucy in the sky with diamonds

Follow her down to a bridge by a fountain
Where rocking horse people eat marshmallow pies
Everyone smiles as you drift past the flowers
That grow so incredibly high

Newspaper taxis appear on the shore
Waiting to take you away
Climb in the back with your head in the clouds
And you’re gone

Lucy in the sky with diamonds
Lucy in the sky with diamonds
Lucy in the sky with diamonds

Picture yourself on a train in a station
With plasticine porters with looking glass ties
Suddenly someone is there at the turnstile
The girl with the kaleidoscope eyes

Lucy in the sky with diamonds
Lucy in the sky with diamonds
Lucy in the sky with diamonds
Lucy in the sky with diamonds
Lucy in the sky with diamonds
Lucy in the sky with diamonds
Lucy in the sky with diamonds
Lucy in the sky with diamonds
Lucy in the sky with diamonds [fade out]


2 thoughts on “In the Stacks: Medi Facts Brought to You By Steve

  1. My partner and I absolutely love your blog and find many
    of your post’s to be what precisely I’m looking for. Would you offer guest writers to write content in your case?

    I wouldn’t mind producing a post or elaborating on a number of the subjects you write concerning here. Again, awesome web log!

  2. Well my goodness, thank you so much for the feedback! I really appreciate your response, it means a lot to me that my blogs are actually worth writing. hahaha 🙂 kidding. I personally would love to have extra feedback and featured blogs to add onto our page. I’ll tell you what, the librarian who runs our page is in tomorrow and I will ask her once she comes in if she would be able to feature any blogs you may have for our page. Thank you so much again!

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